So If It’s Dysautonomia, Wouldn’t Long Covid Be Permanent?
I believe primary dysautonomia doesn't exist outside actual observable nerve damage, and it's always secondary to something, and when they can't find the underlying cause it's because the current medical field just doesn't have the tools, like they don't have the tools to understand what's happening to us, or cfs, or a bunch of other conditions, probably something autoimmune but we won't know for sure for sometime.
More on reddit.comDysautonomia post COVID
My doctor told me that the majority of his patients with POTS/dysautonomia do recover. However, he could not provide a timeline because his patients all take different amount of time to recover.
More on reddit.comCovid and dysautonomia
Covid gave me dysautonomia
More on reddit.comIs Long covid basically just dysautonomia?
Yes it is and you are very lucky to have a doctor that is supportive of that diagnosis. It took me over 8 months of aggressive research, a poor man’s tilt table test with my Apple Watch, and a lot of gentle pushing to convince my doctor to refer me to a neurophysiology lab to do an actual tilt table test. Plus they have a 6+ month waiting list. I was able to snag a cancellation in 1 month by calling every day and asking.
The results came back as abnormal. This was really critical as it was my first medical diagnosis that helped me on short and long term disability through my work.
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